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The hip bone's connected to the ...

In an attempt to fix my lingering tailbone and pelvic pain from my LPAO, I had an appointment with a new doctor today.

She kneaded and touched, poked and prodded. I leaned and twisted, pushed and pulled against her. She told me my case was a puzzle, "refreshing," she said. Then she confirmed what my physical therapist had already concluded: my uneven joints are throwing everything off, from my leg length to my posture to the way I sit.

After all, the hip bone's connected to the ... shoot, according to my doctor, it's connected to the sacrum, tailbone, pubic bone, a bunch of muscles, tendons and ligaments, and last but not least, the leg bone.

Dr. Connally couldn't tell me if the problems were due to the dysplasia, the surgery or the recovery. She did tell me she was hopeful we could straighten things out and make my pain go away. She wants to put me on Celebrex short-term to lessen the inflammation in the ligaments, but I don't know how long I have steer clear of anti-inflammatories (which inhibit bone growth, and therefore aren't a good idea for patients whose bones were sawed apart). I will e-mail Dr. Mayo tomorrow.

This is a post-op complication I worried about. I mean, my body's alignment was messed up for almost 30 years and then it was radically changed. Twice. I know it will take time to adjust, and I hope I'm doing the right thing by getting help now.

Comments

Hip Chick said…
I've read about a number of us who have had tailbone pain. I think our OS's need to work on this...
sare said…
Hi There,
Any update on the tailbone saga? I have not long found your blog which is awesome by the way! I am facing a PAO in July and in the lead up have had excessive tailbone pain. I am keen to sort it out before the op as I don't want pain from sitting post-op. I am going to the doctor tomorrow and will hopefully get some scans to figure it out. Thought you might have some further info, ideas or suggestions.
Thank you!
Cass said…
I was going to post soon about my tailbone but haven't gotten around to it. Updates: the pain has gotten really bad and I'm seeing a new pain management doctor in two weeks. My surgeon has recommended a steroid injection into the bone. Sounds painful, but I'm willing to try it at this point.
I'm sorry you're having similar problems. Because I was on so many painkillers following my PAOs, my tailbone didn't bother me until about four or five weeks post-op; I hope your situation is the same. Please keep in touch and let me know how things are going. Maybe we can help each other!
Take care,
Cassie

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Questions for surgeon pre-op

Below is my list of questions to ask Dr. Mayo pre-op.

About pre-op care and my dysplasia How many degrees is my dysplasia?How’s the other hip? When will I need surgery on it?What are my chances for a successful surgery?Should I be following any special diet or medication restrictions?
About the surgery
How long is the surgery?Will you be doing the entire surgery or do other surgeons help?Chances of finding FAI or tears in labrum? Then what?Worst-case scenario while in surgery? Any chance of THR or no PAO?Will I be intubated?Do you do a bone graft?Where will scar be?What kind of stitching?When will the catheter go in?What are the screws made of?Will I lose much blood during surgery? Should I donate my own blood prior to surgery? If so, will I get that blood back? About post-op care
What can I expect during my hospital stay? How long will I be in the hospital?How will my pain be managed in the hospital and at home? Will I get an epidural? When will it go in? What items do I need at home to he…

4 months post-op/scar pic

If there's one blanket statement I could make about having a periacetabular osteotomy, I would say this:

It's a long recovery.

When friends, family, co-workers and strangers have comments or questions about the surgery, it's usually something like: "That sounds awful!" or "Was it really painful?" or "Scary."

Truth is, while it was awful, painful and scary at times, this whole time, it simply has been long. At four months post-op, I still feel remnants of surgery in my hip. I still can't lie on my op side for longer than an hour or two without discomfort, and I still have to help my leg in and out of the car on occasion. My hip is still tender to the touch, and of course, that tailbone ...

Don't get me wrong. I have SO much to celebrate, and I can't imagine myself happier with my left hip. I have recovered smoothly and quickly. I'm not asking for anything more. That being said, I have made the following progress in the past two …

3 years post-op LPAO

A surgery can change your body. Two surgeries can change everything.

Today, on the third anniversary of my LPAO, I inevitably think back to my first operation and the years leading up to that day.

Everything has changed.

I am an outdoors enthusiast and exercise nut. I can stay on my feet all day. My new body has freed my soul, and my heart responds in kind.

The breakdown is exactly the same as it was at two years post-op: zero pain with a couple of exceptions, great range of motion, same tingly patch and itching. The one difference is that my tailbone pain has waned considerably, which gives me much, much relief.

I'm a different person today than I was on April 23, 2008, and I'll be forever thankful.