Skip to main content

Hallucinations and pain

Both have been accompanying me as I wean off my pain meds.

My oxycontin prescription has run out, which leaves me with plain ole oxycodone to relieve my pain. I've been weaning myself from those, as well, and normally take one or two a day (instead of 1-2 every four hours). The combination has led me to discover just how much pain they've been masking.

The first day off the oxycontin was the hardest, as I hadn't slept much due to hallucinations in the night; extreme hot and cold flashes; and general discomfort of sleeping completely on my back with my leg in the cpm. When I got out of bed in the morning, everything hurt. From the palms of my hand to my armpits to both hips and knees, I was aching. It's not terrible pain, but combined with a lack of sleep, they're enough to make me a little cranky.

I got little to no sleep again last night, and started to cry this morning when Mom asked me what was wrong. "I'm so tired of not being able to move," I cried, feeling absolutely defeated. So I got out of the cpm, and Mom helped me onto my stomach. It felt wonderful, though a little strange on my hip, and I finally fell asleep. After 45 minutes or so, I woke up and proceeded to inch myself over to my right side. That, too, felt strange but okay, and I slept a little more in that position.

Sleeping is definitely the hardest thing to do right now. It's neither normal nor comfortable to lie in one position all night, but even when I'm done with the cpm, I don't know how I'm going to sleep. Right now, I can't get onto my stomach or side by myself, so I'm just stuck. I'm not supposed to actively move my own leg, so repositioning is just not easy. Any suggestions?

I'm starting to feel the gloom of my limitations, and hope this phase passes soon. I feel tired, achy and beaten down. Blech.

Comments

MY PAO STORY said…
Cassie - you will be amazed at the things you will be able to do as each day passes. It takes awhile - but it comes! I slept on my back for a LONG time - then was able to sleep on my "good" side. The stomach came much later (I could feel the screws when I went on my stomach) - and just within the past weeks I have been able to comfortably sleep on my PAO side. I also spent a lot of time the first few weeks in a recliner - a little better than laying on your back in bed. I also took a pain med before bed for a long time - to help me sleep.
Beth :)
Lauren said…
Cass
Definitely the pain medication helped me sleep at night. I wasn't in a CPM so I have no idea what that feels like but I slept for many, many weeks on my back with 3 pillows under my leg. It would have been tricky without the pain meds. Also remember that taking them and then coming off of them will make you feel very emotional. I was known for crying randomly and for little reason which is very unlike me. You will see though that like Beth said that there are improvements with each day. Look how far you have already come and it's only 2 weeks post surgery. Just be patient with yourself. It will all come right with time.
Anonymous said…
Cassie

This is the blechy period and sleep is hard to come by but it won't last it's just another phase. Weaning off of pain meds takes times but it definitely helps to take something before bedtime and lots of pillow propping helps because sleeping on your back gets old. It may also be a good time to start developing a more normal sleep schedule you may be tired at first and still require naps but it can help you begin to acclimate to a pattern that reflects you more! Take care you are doing great you are only 3 weeks out!

RK

Popular posts from this blog

Questions for surgeon pre-op

Below is my list of questions to ask Dr. Mayo pre-op.

About pre-op care and my dysplasia How many degrees is my dysplasia?How’s the other hip? When will I need surgery on it?What are my chances for a successful surgery?Should I be following any special diet or medication restrictions?
About the surgery
How long is the surgery?Will you be doing the entire surgery or do other surgeons help?Chances of finding FAI or tears in labrum? Then what?Worst-case scenario while in surgery? Any chance of THR or no PAO?Will I be intubated?Do you do a bone graft?Where will scar be?What kind of stitching?When will the catheter go in?What are the screws made of?Will I lose much blood during surgery? Should I donate my own blood prior to surgery? If so, will I get that blood back? About post-op care
What can I expect during my hospital stay? How long will I be in the hospital?How will my pain be managed in the hospital and at home? Will I get an epidural? When will it go in? What items do I need at home to he…

4 months post-op/scar pic

If there's one blanket statement I could make about having a periacetabular osteotomy, I would say this:

It's a long recovery.

When friends, family, co-workers and strangers have comments or questions about the surgery, it's usually something like: "That sounds awful!" or "Was it really painful?" or "Scary."

Truth is, while it was awful, painful and scary at times, this whole time, it simply has been long. At four months post-op, I still feel remnants of surgery in my hip. I still can't lie on my op side for longer than an hour or two without discomfort, and I still have to help my leg in and out of the car on occasion. My hip is still tender to the touch, and of course, that tailbone ...

Don't get me wrong. I have SO much to celebrate, and I can't imagine myself happier with my left hip. I have recovered smoothly and quickly. I'm not asking for anything more. That being said, I have made the following progress in the past two …

3 years post-op LPAO

A surgery can change your body. Two surgeries can change everything.

Today, on the third anniversary of my LPAO, I inevitably think back to my first operation and the years leading up to that day.

Everything has changed.

I am an outdoors enthusiast and exercise nut. I can stay on my feet all day. My new body has freed my soul, and my heart responds in kind.

The breakdown is exactly the same as it was at two years post-op: zero pain with a couple of exceptions, great range of motion, same tingly patch and itching. The one difference is that my tailbone pain has waned considerably, which gives me much, much relief.

I'm a different person today than I was on April 23, 2008, and I'll be forever thankful.